Julia Grace Knight
January 15, 2002-November 4, 2013
"Life isn’t about waiting for the storms to pass, it’s learning to dance in the rain."
Dancing in the rain was what Julia Grace did, every day of her life. Julia didn’t wait for her storms to pass; she showed love and joy to all those around her despite what she was going through because of a rare disease called I-cell. For 12 years, Julia lived a medically fragile life with an infectious giggle and a beautiful smile that not only lit up the room, but every heart she touched as well.
Our sweet, precious girl. How we miss your belly laughs, your smiles, your hugs, your eyes, your humor, your cuddles…your love…your everything. You were a shining light, a calm in our busy day, a sign of greater things. You taught us how to visit, how to slow down and enjoy one another, how to love unconditionally, how to have hope. The pain of missing you is under every smile, every day, every moment. But it is there because of the depth of our love for you. You changed our life, you changed many lives. You were a life changer, a Raindancer, a lover of music and dance, baths and your puppy, Tucker. You created new hobbies like “spinning” and knew how to boss people around, with a smile, just so you could get what you wanted. You loved your ‘Bubba’, and you were the best sister he could ever have. He was your hero, you were his princess, and always his #1 fan. We are glad for you, and happy you are now free of this world’s suffering. We miss you and will see you in a twinkling of an eye…so glad you were ours, and we were yours. We love & miss you sweet, beautiful girl.
Your Momma, Dada, & Bubba
To fill in the gaps, grant wishes, and meet non-medical needs for children who are seriously ill, have special needs, or are in a medical crisis.
The Sweet Julia Grace Foundation (SJGF), based in Bristow, VA, is a 501(c)(3), non-profit organization, INSPIRED by and in honor of Julia Grace Knight, who passed away in November 2013 from complications related to a rare disease called I-cell. Julia lived 12 beautiful years inspiring everyone who knew her, read about her, and loved her. Despite the storms she faced, Julia knew how to “Dance In The Rain.” She lived in the moment, made life SWEET, and filled hearts with JOY…just by being her.
The Sweet Julia Grace Foundation was founded by Julia Grace’s mom, Sara Knight shortly after Julia passed away. SJGF supports families whose children are facing more than most do in a lifetime. These amazing children show us what it looks like to be true overcomers. They find joy in the midst of their suffering and share their precious smiles with the world during some very difficult life ‘storms’. The simple joys of childhood are often put aside and replaced with hospital visits, surgeries, clinics, medicine, therapy, and adapted equipment to meet their special day-to-day needs. Yet they remain courageous and resilient in the face of it all.
SJGF strives to bring Raindancers as much JOY as possible by providing these inspirational children with gifts to bring comfort, happiness, and often times dramatically improve and change their lives.
SJGF builds ramps, buys all-terrain wheelchairs, modifies homes to give more independence, sends children on DREAM trips, fulfills ‘bucket list’ wishes, arranges celebrity meet-and-greets, creates outdoor spaces for children to enjoy, reveals room makeovers, contributes therapy-related gifts, throws parties to celebrate birthdays and ‘end of chemo’... and so much more.
The support SJGF gives a family goes way beyond the child facing the actual medical crisis. Gifts & special support is given to both the siblings and parents, and programs have been developed by SJGF so families can be properly supported.